As I mentioned in an earlier blog entry, one of the major
factors in getting us this far in our trek has been the commitment that Jeff
has had to completing the journey as a way to raise awareness of the children
experiencing genetic diseases such as the San Felipo syndrome that his daughter
Aly has. Along the way, every night he
has talked to his wife Mary and most of the time it seems they have discussion
about the various medical issues or care issues going on with Aly. No special needs child could have better
parents than Jeff and Mary, along with Aly’s sisters, Nicki and Becky. They are an inspiration to all of us. If perhaps you have enjoyed following us on
this unlikely dance across the country, maybe smiled, or laughed, or groaned,
or shed a tear at our misadventures, and if you are so inclined, you can still
join in with a donation to the MPS society that provides support to Jeff and
Mary and the other parents of MPS children by going to Aly’s website at www.mpssociety.org/donor-pages and go to the Aly Von Handorf Courage Page. Thank you!
Jerry and Sue
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